It’s been 15 months into MDR treatment but it feels like I’ve just started yesterday. The side effects are still there and the journey still seems very long although there are only a few months left till I get discharged.
The medication still plays the same tricks as it was at the start, but now it’s a little bit difficult because at the moment I’m currently having part time jobs as I have already been discharged from the injection and my sputum has converted since february 2013.
The difficult part is that I have to take my medication in the evening around 18:00, sometimes 19:00, and then the medication starts working around 20:30 that’s when I start to feel side effects happening all the way through the night till around 02:30 in the morning the next day. Most of the days I get 6 hours sleep maximum which is really not enough for a patient.
The only thing that kept me going for all these months is the fact of knowing that there will be some bright light at the end and I will be cured. It was also to put some motivation for my peers so that they can also hold on and take the whole treatment so that they can be cured.
The saddest part of this whole TB thing is that there are still some people who refuse to take the medication therefore they end up spreading the disease to some innocent souls. I support the “TEST ME, TREAT ME” DR-TB Manifesto.