World TB day is in just in few weeks time. Instead of celebrating zero TB deaths someone is dying, many are sharing their depressing stories caused by TB. Happy world TB day? Oh no there’s simply nothing to be happy about.
Just a year ago I wrote the TB manifesto, with the help of doctors and fellow TB patients. It simply states the demands that are needed: for one the current TB drugs are a nightmare. Go anywhere in the world and ask the worst case scenario about -DR TB drugs, you will simply see the disgusted faces on people who are taking those hellish drugs.
Still on drugs, there’s a new drug that has been approved, Bedaquiline after 50years, not many patients have access to it simply because it is expensive … why that one drug is such a luxury? It shouldn’t be like that. Why in order to get it you are considered “lucky”. Then the is a case of patent laws here in South Africa. The drug that cured me called Linezolid cost close to R700 and that’s 1 tablets in a box of 10tablets, so a box of 10 tablets cost close to R8400 then multiply that by 2 years while taking treatment. It is Luxury!!
Well the demands being heard out there, and things being done, perhaps we need to involve politicians? Perhaps summon people who are highly respected, the likes of presidents? Maybe then those plea and demands suddenly the will be things getting done. What’s the point of repeating same thing all over again when nothing is being done about it? The excitement of a new drug which is a luxury, mind you it’s not like that drug will be taken alone it is an addition to the old hellish drugs, and of course it has it’s special side effect whereby it can mess with your heart.
I’ll be excited the day where the will be ONE drug for DR-TB, non toxic, and the day where the will be zero TB deaths. Now that day I will call it, HAPPY WORLD TB DAY!!