Fieldset
Stigma.

The MDR TB has affected me socially. I came here, they put me in isolation and my relatives, they don’t come and see me. Some of my friends also don’t want to see me. And I really feel it. Why do some of my relatives not want to see me? Why are my friends just running away from me?

The MDR TB has affected me socially. I came here, they put me in isolation and my relatives, they don’t come and see me. Some of my friends also don’t want to see me. And I really feel it. Why do some of my relatives not want to see me? Why are my friends just running away from me? Then they told me MDR TB does means people can't come and sit near you. If they come near you, you spread the infection to them. That’s when I realized, OK, this is the reason some of my relatives don’t want to come and see me.

I stayed in isolation for quite a long time. My mother has struggled to attend to me. She really struggled. She really did her best, but you see, this MDR TB takes a long time. Sometimes she gets tired. She looks after me, then she goes to the house, but with no energy to do other things. Ideally I'd be helping my mother, but now she’s the one helping me. My mother has really struggled for me. And had I not been her son, really, I would not be alive like I am now.

This MDR infection has given me a clear view of the frame of mind of my relatives. It’s really shown me those who like me and those who don’t. Some of them, they come, and that’s why I know this really is a person who likes me a lot.

To get rid of this stigma so that my friends and relatives come to see me, I think I have to pray to God. I send my prayers to God, day and night, that MSF should give me the drug that cures me, so that they all come back to me.

And this MDR has given me other really bad problem. All of my wives divorced me. They left me. Right now, as I talk, some of my children are at home. They are not at school. I have no capacity to pay for their school, but if I get cured, I’ll do all of this. And I really pray to God that I get cured, that I get cured and people around here see that I really am cured, and it shows that people with MDR TB can get cured.

Already they have changed the regimen – I will just adhere to the drug that the doctor changed me to. Now they have changed to a regimen I am compatible with, I will continue taking this drug until, hopefully, I am cured.