The messages and letters that people who read my story send me give me hope.
There are one or two things I would like to say to you all. I’m really happy about what the people have said to me, and the messages they sent for me.
I am very happy.
There is a lot of improvement. Though I feel the pain, the pain is not as much as it was; and since I did my first diary entry, there is a lot of improvement. Even if I feel pain, sometimes when I get up and keep on walking around, sometimes the pain can reduce, it can try to go away. So there are a lot of changes, positive changes in terms of pain, though it is still there.
Before, I could not even walk a distance. Just, maybe 10 steps. I felt so tired and I had to sit down. But now I can even walk one mile and I don’t get tired.
And there is a lot of improvement in terms of my breathing. Nowadays I can breathe very well. I’m now more than one year on treatment and I can walk and I have no difficulty in breathing. So there’s a lot of improvement
But I want to tell you about one of my concerns. I still feel a lot of pain in the limbs, in the legs, and that makes me worry a lot. I have been weak for long, and now I think about getting back to my former status when I was still OK. I keep on thinking about how am I going to get back to normal life, to be like myself from before.