Fieldset
Belief in a cure

In the end I will go back to Gulu. That is the place I know very well. I lived there so many years. That is my plan. I lived there during the conflict and didn’t leave until last year -16th of May. That is the day I came to Kitgum, because of my illness. That is the thing that brought me here.

In the end I will go back to Gulu. That is the place I know very well. I lived there so many years. That is my plan. I lived there during the conflict and didn’t leave until last year -16th of May. That is the day I came to Kitgum, because of my illness. That is the thing that brought me here. I had a business in Gulu. I had some land and even a motor vehicle. From there I could do business very well. But when I got the sickness I sold it. I have not been back to Gulu since last year. I can’t ask my brothers and sisters to help me get to Gulu. It is better to ask our mother. My 2nd and 3rd brothers are there in Kampala, working. But they don’t give any assistance to me. Even my children are never around. They all think my sickness will not get cured. They think I’m going to die with my sickness. They believe that I am useless. I don’t say anything - I just keep on praying. I remember, on the 9th October, on Independence Day – one of my sisters from Kampala sent 5000 Ugandan Shillings for me for that day. But my brother, I don’t know why, he won’t come to visit me. I asked someone else from the family to ask him to come but he doesn’t. I have asked him many times on the phone, very many times! He just keeps on saying ‘I’m coming, I’m coming, I’m coming’. But for more than a year, he has not come here to see his sick brother. We are just talking on the phone. The big problem is that my relatives do not believe I can be cured! But I really can get cured from MDR-TB and I can live with HIV for many years to come. But they believe that I will die any time now. Before I was diagnosed with MDR TB I went and tested positive for HIV. I was put on ARVs, and after 3 months I was diagnosed with TB. Then I was put on ARVs together with the TB treatment. But before I was not taking ARVs I only found out my positive status three months before my TB diagnosis.