Looking forward

Ingrid is 21 months through a 24 month treatment for pre-extensively drug-resistant tuberculosis (pre-XDR-TB)

Ingrid Schoeman
I am 21 months into my treatment and just as tired of taking my meds as I was the first day. The peripheral neuropathy in my feet is still painful and keeping me from activities as running and tennis, but the physio is helping me a lot. The second problem is the chronic diarrhoea. No need to expand on that :)
The other thing that bothers me is that I feel quite tired often and miss having loads of energy!
I used to have these grey-blue eyes but the colour has changed - it still feels strange looking into the mirror and seeing these yellow-brown eyes. I wonder if it happened due to the liver failure. But I suppose a lot in me has changed too, and I am starting to enjoy the process of building my life again.
I must say though that it is going so much better, life is good in other areas
-       I love my  family. My family provides a safe place for me to be myself. Being the last child of three daughters, I have always been looked after like the 'baby' (as my mom would say) and I appreciate everyone's care for me, it has been such a blessing.
-       As I had to quit my previous job in the government hospital, I now found a new job, or it found me. I enjoy my work and feel passionate about it. Dr Liana Steenkamp inspired me in the field of research and I'm so grateful for her goodness to me.

- Even my hair has grown back after most of it fell out

I realised how important support structures are - it really pulls you through when you don't have the energy to do it yourself. I thank God for them, He knew I wouldn't cope without them and provided for me. 
I feel sorry for people without support systems because I know how emotionally difficult it is feeling sick over a long time.

Hopefully after being sick all of us who had TB will have more empathy for others who are sick and care for them like others cared for us.


Are you going through treatment for multi-drug or extensively-drug resistant tuberculosis? Or maybe you've finished your treatment? Why not share your story on TB & Me?