Hi for a long time! I intended to write sooner after my last post in June but my summer went badly so I couldn't. Since the last post my medication has ended. That means I only had
MDR-TB medication about a year.
I got such bad side effects that my doctors made a decision to stop the medication and hope that I'm cured.
What happened to me was that my body sort of paralyzed, I couldn't walk at all, my legs just didn't work. Sometimes I couldn't even hold my head up because my neck was too weak. If I tried to walk I fell down. I was totally helpless and needed help even to go to bathroom etc, it was humiliating. I had to stay in a hospital about a month and spent about two months in a wheelchair. About a month after my medication had ended I started to feel a little bit better day by day. I got some physiotherapy and was able to have short walks with rollator. Now I've been without pills for about three months, I feel better. I'm able to walk almost normally even though my legs are still somewhat stiff. The rollator I gave back to hospital couple days ago.
The paralyzing thing was not all that happened: the medication totally messed my head and I had a psychosis. It was horrible and I prefer not to think about it more. After ending the pills I've been feeling mentally fine.
My doctors believe it's possible that I'm cured already even though I didn't have the medication for two years as usual. That's because my disease was found in a very early stage and the infected area was very small. The doctors are not sure about my situation though. That's why they check my condition every couple months, so it means blood samples, x-rays etc. They say that they can be sure about my recovery only after about 10 years.
I try to stay positive and believe the disease is over now, at least I feel OK now.