I sometimes meet other MDR TB patients. There have been organised meetings for us, but I’ve never been. Once, I got information late and another time, I was ready to go but the staff failed because they couldn’t make it.
Sometimes when they organise to take you for x-ray examinations, we end up all gathered together. Like the other day, four of us met up inside the hospital.
This was the time we discussed at length the side effects of the drugs and the side effects of the family planning injection. Those two ladies and me we were all complaining of the same thing. We are all getting similar side effects of the body - the pain of the legs and so many other side effects.
So that made me worry less!