At the start I was having eight drugs (and the injections) and then it increased to 35.
35 drugs, plus the injections!
Then, when my condition was stabilising, it started declining. From 35 it became 17. And that's where I am now… 17 tablets and I take them every day! Except Sundays, when I have a break… It's so much better on Sunday. In that gap I feel very free, very ok, like somebody who is not taking anything! But the worst comes on Monday when I start to take the drugs again - it's like I've started afresh!
Life's not easy, I feel like just resting, all my body is hurting. It gives me A LOT OF PAIN! Not easy on Monday….
At least there are no injections for me anymore… That was painful and they don't inject in the arm or any other places, they only inject in the buttocks! Once a day – every day. It was painful but the pain only came after five months. Then it was a very, very, very hard pain! And once you've had the injection you find that your whole body is in pain. And the worst was when they injected you at midday. It hurt even more. At least in the morning time when the body is still cool, you do not get too much pain. I didn't like it but when you are on treatment you cannot refuse. They must inject you, that’s just the way it is.