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Making lemonade from lemons

Making lemonade from lemons

When life gives you lemons... An inspring blog post from Mariam full of hope and determination.

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What happens if you get extensively drug-resistant tuberculosis twice?

What happens if you get extensively drug-resistant tuberculosis twice?

Mildred returns to her blog with a great interview she did with Global Post about her experience of going through treatment for extensively drug-resistant TB (XDR-TB) not once, but TWICE!

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Background

Background

Here, I live with the family. I live very carefully. I don’t cough in front of people. If I have to, I do it in a different place. I don’t let children come near me. I am not very happy. I am afraid to go near people. It hurts me.

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Bloggers
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Phumeza Tisile

Phumeza (20) was diagnosed with XDR TB in June 2010. She had to suspend her studies at the Cape Town technical college to be admitted to hospital…
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Athong

Athong lives in Manipur, India. He was diagnosed with TB in 2005 and MDR TB in 2010. He is a driver but had to quit his job when his health deteriorated.
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Churchill Opera

Opera Churchill is a 34 year old and has multidrug-resistant tuberculosis. He is currently being treated by MSF in Kitgum, Uganda.
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Grace Lamwaka

Grace Lamwaka has had to suspend her agriculture studies in Kitgum, Uganda because she is currently being treated…
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Lucky 

Lucky

Lucky is 28 years old and was diagnosed with XDR TB in June 2011; she is HIV negative and never had TB before. She is an NHS patient in the United Kingdom.
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Mariam Davtyan

Mariam Davtyan (21) lives in Armenia was diagnosed with MDR TB in 2009. Her blog is also published in Russian here.
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Zanele Mavuso

Mother of five in the Shiselweni Region of Swaziland. She began MDR-TB treatment in February 2011. Her daughter, Colisile, is also blogging.
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Christiaan Van Vuuren

In December 2009 I was diagnosed with TB. The Doctors suggested that it was likely that I picked it up when I was travelling in South Africa…
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Madan Mishra

Madan is 36 and from Mumbai, India. He has been on treatment for MDR-TB for 9 months and for HIV for 3 years and 4 months..
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Jabulile Sithole

38 year old woman in Emakhweleni, a small community in the Shiselweni Region of Swaziland. She began MDR-TB treatment in November 2010.
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Mildred Fernando

Mildred is from the Philippines and has recently recovered from XDR TB. She tells her story here.
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Nodjindo

Nodjindo is from Central African Republic and is blogging in French. She is waiting for drugs to arrive so she can start her treatment for MDR TB.
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Colisile Lushaba

A 25 year old from Swaziland, Colisile began her MDR-TB treatment In January 2011. Her mother, Zanele, is also blogging.
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My parents called me lucky and I guess it’s absolutely true to me – “I am lucky”. You may be wondering what makes me feel lucky? It’s the feeling that I am alive and going to be with my family, my loved ones. That makes me feel lucky and very happy. If I flashback the [...]

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I’m happy I can see a great change. There’s a great change in me. People have been saying I look strong and I am strong! I can do a lot of things!! I’ve been running, I’ve been walking, and today, even though I have worked tirelessly, I don’t feel any pain. Not in my chest, [...]


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La première fois que je suis retournée à Bangui, j’ai ressenti des malaises tout au long du voyage par la route mais au bout de quelques temps, ces malaises se sont dissipés. En ce moment, mon stock de médicaments pour mon traitement contre la tuberculose est épuisé, je suis sans médicaments. J’attends toujours patiemment ces [...]

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I am doing some small exercises now. In the morning, I jog around, come back, clean my room… Then in the evening I take a walk around town. When I was in primary school, I used to run 25 times around the field, about 1250 metres. And I was fast! Before I was sick I [...]

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This post is also available in Russian After refusing the drugs and leaving the hospital, I felt incomparably quiet, as I wasn’t in the hospital conditions, which were very overwhelming. Together with my parents I tried to find different treatment methods like other drugs or herbs, but everything only had a temporary effect and I [...]

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