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Making lemonade from lemons

Making lemonade from lemons

When life gives you lemons... An inspring blog post from Mariam full of hope and determination.

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What happens if you get extensively drug-resistant tuberculosis twice?

What happens if you get extensively drug-resistant tuberculosis twice?

Mildred returns to her blog with a great interview she did with Global Post about her experience of going through treatment for extensively drug-resistant TB (XDR-TB) not once, but TWICE!

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Background

Background

Here, I live with the family. I live very carefully. I don’t cough in front of people. If I have to, I do it in a different place. I don’t let children come near me. I am not very happy. I am afraid to go near people. It hurts me.

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Phumeza profile pic 

Phumeza Tisile

Phumeza (20) was diagnosed with XDR TB in June 2010. She had to suspend her studies at the Cape Town technical college to be admitted to hospital…
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Athong

Athong lives in Manipur, India. He was diagnosed with TB in 2005 and MDR TB in 2010. He is a driver but had to quit his job when his health deteriorated.
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Churchill Opera

Opera Churchill is a 34 year old and has multidrug-resistant tuberculosis. He is currently being treated by MSF in Kitgum, Uganda.
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Grace Lamwaka

Grace Lamwaka has had to suspend her agriculture studies in Kitgum, Uganda because she is currently being treated…
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Lucky 

Lucky

Lucky is 28 years old and was diagnosed with XDR TB in June 2011; she is HIV negative and never had TB before. She is an NHS patient in the United Kingdom.
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Mariam Davtyan

Mariam Davtyan (21) lives in Armenia was diagnosed with MDR TB in 2009. Her blog is also published in Russian here.
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Zanele Mavuso

Mother of five in the Shiselweni Region of Swaziland. She began MDR-TB treatment in February 2011. Her daughter, Colisile, is also blogging.
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Christiaan Van Vuuren

In December 2009 I was diagnosed with TB. The Doctors suggested that it was likely that I picked it up when I was travelling in South Africa…
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Madan Mishra

Madan is 36 and from Mumbai, India. He has been on treatment for MDR-TB for 9 months and for HIV for 3 years and 4 months..
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Jabulile Sithole

38 year old woman in Emakhweleni, a small community in the Shiselweni Region of Swaziland. She began MDR-TB treatment in November 2010.
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Mildred Fernando

Mildred is from the Philippines and has recently recovered from XDR TB. She tells her story here.
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Nodjindo

Nodjindo is from Central African Republic and is blogging in French. She is waiting for drugs to arrive so she can start her treatment for MDR TB.
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Colisile Lushaba

A 25 year old from Swaziland, Colisile began her MDR-TB treatment In January 2011. Her mother, Zanele, is also blogging.
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The sickness has been here for a long time and I think my mum is now very tired. She cannot cope like she used to when I was in hospital. She used to cook in the morning, lunchtime and supper. Now mother only cooks in the morning and brings me some food in the evening. [...]

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I am feeling good in my new house. My treatment is going well. Though, I still have side effects. Often I have pain in my hands and legs. Two of the nails from the feet have fallen off. My finger nails also hurt a lot. But it is all right. My mother cooks for me [...]

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2010 and 2011 living with XDR-TB… Now we are going to enter 2012 in a couple of weeks. TO ME THIS IS JUST A HORROR MOVIE and it seems like it is not yet ready to end. Just when everything is starting to get better, something will come on the way and there will be [...]

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Je m’appelle Nodjindo Giblotte, j’ai 31 ans et j’ai deux enfants de 14 et de 10 ans. Ma maladie a commencé par des vomissements de sang. J’ai consulté à Bangui, mais les résultats sont revenus négatifs deux fois de suite. Je ne savais pas que c’était la tuberculose parce que ces tests étaient négatifs. C’est [...]

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What I want to say… I am very happy with the Médecins Sans Frontières organisation, for what they’re doing because they’re the one which have made me still alive like this. So I congratulate them for their work and may God bless them.

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