The good news or the best thing that has happened over the last month is that I have stopped vomiting. I was really starting to think that it was going to kill me. I also have put on a little bit of weight and it puts a smile on my face when people tell me that, but I must also say that I was very disappointed when the results for my culture came back positive. I do get a lot of emotional support from my family but financially we are struggling a lot and the government is not doing anything to help us. I wish that our government could at least help us with food parcels because after taking the drugs on an empty stomach I feel very sick and dizzy at the same time and I think that’s why a lot of patients end up stopping taking their drugs.
I really appreciate the help we get from MSF, the money we are given. The support groups they helped us form are very educational. I have learnt a lot from the support group on how to deal with my treatment and the side effects that come with it. If it weren’t for the support groups I don’t think that I would be able to cope with my condition, the support group was a brilliant idea, I am happiest when I attend the support group meeting but it scares me a lot when we loose one member, the thought of dying starts flooding my mind.
For this month I hope and pray that I produce at least my first negative culture results and for the future I hope to finish my treatment, meet the right guy, settle down and start a family like any other ordinary woman my age.
Wish u a good luch….. Chatoyant arts
Alll the best……..from chatoyant arts
Pingback: [Voice from the Field] TB & ME Blog
Colisile,
Thank you so much for sharing. You write well, as a reader I can really “feel” your experiences.
I’m so glad MSF is there to help you.
Like another commenter, I too had quite a bad disease… almost died, but with good doctors and courage, was able to make it through and slowly rebuild a new life. It takes time, and it’s discouraging in the beginning, but please take heart in your dreams! Dreams are what keep our courage alive
Take care, my thoughts are with you, I hope all works out for the best.
Pingback: [Voice from the Field] TB & ME Blog
Colisile,
My husband and I lived in your country for 2 years before you were born. We were Peace Corps Volunteers. It saddens me to know the Swazi people suffer so. I am praying for you and for your mother.
Colisile, may God bless you and keep you strong. May the researchers find safe and effective treatment for your condition, and may all your dreams come true. Pray for healing, and have faith. Love to you. Mike.
Hello, Colisile – I was very moved by your writing. Thank you for sharing your experience with us. It must feel very lonely sometimes and discouraging…I will hope for your full recovery and the full life you deserve.
I have a great deal of respect for MSF and will support them in the small way that I can….
Warm regards and kindness,
Lisa
Dear Colisile,
. Miracles do happen. Now I am 30 and can finally think of working, starting a family, and all you wish for, too.
You’ll be in my thoughts. Love from Italy.
I admire your courage and strength so much!!! I know it must be so hard for you to think positive at times.
I have been very ill with a non-curable illness as they call it for ten years as well, and for a while it looked like it won’t ever pass. But I put a lot of stubbornness in, and I finally got better, against all odds
I am happy to know you also get financial support, it is very important, so that with the support of your family you can concentrate on getting well.
I understand it scares you a lot when somebody dies, I’m having those feelings as well. But please, don’t forget that your courage is your biggest weapon against this illness, and positive thinking, as hard as it is, helps the body to fight the illness, together with the treatment
I pray for you to get well soon, waiting to celebrate your first negative culture results with you!!!
Colisile, I pray for your ordinary dreams to come true, it makes us human to have them and drives us to reach sometimes for impossible. You have been so strong and I truly admire your desire for living and fighting with the disease. May God bless you and future brings good news to you.
Colisile, you are such a courageous woman. I’m 25 years old too, and I will be thinking of you and praying for you.