Reena

Reena* is a four-and-a-half year old girl, who in her younger days was partial to eating a bit of soil. Her parents have brought her to us out of simple desperation. She has been very sick for about three weeks prior to arriving at the MSF Stabilisation Centre.

To say she is “not in a good way” would be an understatement which even the English would be uncomfortable with. She is barely conscious, almost completely unable to move her body, more skeleton than flesh. Vomiting, fever and diarrhoea are her main symptoms. Her father, a carpenter, has spent large amounts of money on local doctors (well, about £40, but it works out as many weeks salary for him). They have prescribed for her the usual mix of placebos and domestos-strength antibiotics, all to no avail. They think she might have typhoid fever. Now the doctors refuse to see Reena, saying there is nothing more to do, and that she will die. They advised the parents to take her to the district hospital, about 1½ hours from Biraul.

Just a bit of background for this hospital. It is very overcrowded – it acts as a referral centre for as far away as Nepal, 60 paediatric beds for too many millions of people – so the level of care there varies. And it is far away. In the end, Reena’s father says there is no way he would even consider taking his daughter there.

The first week is rough for Reena. Despite her pitiful moans whenever we have to examine her, the defiance in her eyes says she is a fighter. We rehydrate her intravenously, which is a start. Anything we try to put into her stomach via the nasogastric tube just comes straight back out of her mouth – this makes her nutritional treatment tricky. We load her with antibiotics, but if anything the fevers get worse. We examine and re-examine her stool, which is reported as normal. On the third or fourth day, now too weak to move, she develops bed sores, something familiar to me only in patients at least 60 years older than this poor creature.

Over the weekend, blood and mucous start to appear in her diarrhoea – dysentery. We have no lab technician on a Sunday, so I decide to have a look under the microscope myself. I’ve not picked one up for about three years since my tropical medicine training and I feel quite pleased with myself when I find the ‘on’ switch. I prepare a very poor slide of her stool, and immediately notice large numbers of something that to me looks like a worm egg.

The next 48 hours are spent discussing this finding and pouring through text books trying to identify it. The lab technician initially tells me it is a food particle, but after showing him enough of them, I convince him otherwise. Besides, the poor girl hasn’t even managed to keep any milk down since she got here, let alone food. Eventually we decide it is a trematode worm egg, which would fit with many of her symptoms. We give her a dose of the standard deworming treatment, and low and behold, she passes a number of fat, half-centimetre little worms in the next few stools. These particular worms do not always respond well to the standard treatments though, and our very kind logistician spends a morning in Darbhanga doing a pharmacy-crawl, trying to source a slightly more targeted treatment. His hard work is rewarded with Reena passing hundreds if not thousands of the little parasites over the next couple of days. We never got a precise diagnosis for this worm, although we narrowed it down to the genus at least – Echinostoma. I suspect the number of them had something to do with the soil-rich diet.

For the next few days things go well. Her fevers start to subside, the vomiting stops, and after almost a week of watching her waste away, we finally start to get some milk into her. Even the diarrhoea improves. The lethargy turns into irritability, which we all have to try hard to remind ourselves is a good sign.

More than anything, I wish I could say there was a happy ending to this story. But the improvement is only short-lived, and after more than two weeks with us, Reena starts to deteriorate again. The fevers return, and the domestos-strength antibiotics are wheeled out once more, but to no avail. I see the fight go out of her eyes, and at this point I have an incredibly bad feeling as to how this is going to turn out. At the limit of what we can do for her, we take her to the district hospital for some outpatient tests and to see a specialist. He advises her to be admitted to the hospital, but again the parents refuse. Unhelpfully, the tests come back pretty much normal.

Late the next evening, I get the phone call I was both expecting and dreading. Reena, the little fighter who ate soil, has passed away. I ask after the parents – there are no tears shed. I think they had resigned themselves to this outcome weeks ago. I ask after the staff (we have all grown very attached to Reena during her time with us). Everyone is very sad, but again, for the last few days we have all had a sense of the probable outcome.

Sepsis got the better of poor Reena. Whether things would have turned out differently had she not been malnourished… no one can say for sure, but at least she would have stood a better chance. So it is for many diseases. If a young child gets severe malaria, pneumonia or diarrhoea, they might be in trouble even at the peak of physical health. To start from a point of malnourishment is to start on a very disadvantageous playing field indeed.

Young or old, no one should have to face this uphill struggle, due to a simple lack of nutrition. As for the team, there is no consolation in words. We are all professionals, and we do our best to separate the human tragedy we have just witnessed from the actions we must now take – picking up the pieces, learning whatever lessons that can be learnt, and continuing to treat the malnourished with renewed determination.

*Name changed to protect anonymity


This post was first published in Spanish in 20minutos.es

This entry was posted in Doctor, India, malnutrition and tagged , , , , . Bookmark the permalink.

10 Responses to Reena

  1. Keep on writing, great job!

  2. YJ Pankhurst says:

    Dear Luke
    Amazing work u r doing out there! I wholehearted admire yr work! This is a harrowing but most unfortunately an exemplary story of a malnourished child. Thanks for telling it. It will move people into action here in the west, I’m sure. The dual nature of yr work – fixing and telling – doubles yr capacity to do gd. Well done indeed!
    Best wishes,
    YJ Pankhurst
    London

  3. Drisdy says:

    thank you for sharing your story. though i’ve seen this in Guatemala, and have not had the opportunity to serve in Africa, I see some similarities. Again, I realize how fortunate we are sometimes to live in the US or other developed countries.
    My prayers are with you.

  4. Thimonnier says:

    I really feel sorry for the girl. To be honest i just hope others are not unlucky as this girl. But i just wonder if Reena was a boy would the parents had said “Yes” to the offer of admitting Reena in a hospital.
    Was it gender biassing?
    A boy goes to school,a girl cannot.
    The male head eats first,then the male child/children and then the females.
    The scenario have not chaged a bit in the peripheries.Its hard to convince the people to do something that would benifit them because i too saw all these in four and half years of my student life in Patna,Bihar.
    Families are happy when a male child is born but when a female child is born there will be another pregnancy within a year hoping to get a male child.The spacing between two consecutive pregnanies is so less that the mother has not recoved from her previous pregnancy which makes severely anaemic.With lack of knowledge about antenatal care they carry on with the pregnancy complicating both her life and the child’s.Then malnutrition crops up and malnutrition being the most widespread condition affecting the health of a person,scarcity of food,lack of purchasing power of the family,as well as traditional beliefs and taboos about what a peson should eat, often leads to an insufficient balanced diet,making them susceptible to infections,slower recovery and higher mortality.
    With limited health care delivery systems, illiteracy,large population,low socio-economic conditions, solving health problems always have proved to be a herculean task for medicos everywhere in India.

    Sending my regards for you and your field of experts.

  5. Reem says:

    Dr.Luke and the team, I understand completely what you are talking about, as I worked in MSF nutritional programme, and we faced such cases, some were crowned with success, others we lost, and I know this feeling as I lived it many times.
    Though I know it is not a consolation, but heads up and all the best in all of your work and efforts.

  6. May God bless you Luke I share your pain and desperation with Reena, we have a lot of Reena here in the Phillippines. Never the less, this is our calling God made us doctors , to give comfort to the afflicted. Im so proud of you my friend, blessed are you who goes out of their way to give more meaning and value to human life. May God bless you always and protect you.

  7. Abigail says:

    Terribly sorry to hear this. Best wishes in your endeavour, Dr. Chapman.

  8. Jin says:

    Hug. Even though what you do may seem like a small drop, but it ripples and makes an ocean of difference. Your work is not in vain. So proud to read this and to know that you didn’t give up!

    Cheers,

  9. Tristan Fletcher says:

    Not sure what to say Luke. It’s amazing what you are all doing and increadibly sad that it’s neccessary and doesn’t end happily. It seems so far away from the excesses of London living and the food halls of Selfridges.

  10. Kaush says:

    I know it’s not consolation, but I’m sorry. All the best & more than luck.

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