Being diagnosed with DR-TB is a double tragedy. You have to deal with the stigma as well as the agonizing medication.
I got my first Drug Sensitivity Test (DST) result in Nov 11, 2004, that was 3 years after I started receiving TB treatment under the management of...
My name is Tendai Mazhazhate and I am aged 38. I live in Nora area in Gokwe North District, Zimbabwe. I am a widowed mother of three and started...
Finally, I was discharged from Chireya Mission hospital last month as I completed the intensive phase of my drug-resistant tuberculosis (DR-TB)...
Finally, this is the moment I have been waiting for. I have just been told today that I am cured of DR-TB and will not have to endure dozens of...
TB&ME is a collaborative blogging project by patients being treated for multidrug-resistant tuberculosis (MDR-TB) in locations all around the world. They are writing about their experiences of living with MDR-TB and the treatment that they receive. This treatment can often involve taking upwards of 20 pills a day for 24 months and suffering many painful side effects from the toxic drugs.
TB&ME has been launched because MDR-TB is a neglected disease. Very little money has been put into the research and development of diagnostics or new, improved treatment and people who are infected by the disease have no option but to take drugs which are painful and leave them feeling weak every day for a very long time. TB&ME gives MDR-TB patients an opportunity to tell the world about the issues which affect their lives, about how treatment and services could be improved and how it feels to have this disease.
It also provides an opportunity for patients to tell the world that MDR-TB exists in their own words, that it is a global problem and to share their experiences with others who might be in the same position.
The TB&ME project is run by Medecins Sans Frontieres/Doctors Without Borders (MSF). If you would like to get in touch for any reason, you can do so by email (email@example.com) or via twitter (http://twitter.com/msf_field)… We’d love to hear from you.
Important to note:
Many of the patients sharing their stories (especially those in MSF projects) do not have access to computers or the internet. In these cases, the patients record their posts and it is translated/transcribed and posted by MSF. The patients’ stories may be edited for comprehension in English, but apart from this, they are unedited. The only exception to this is where information in a patient’s blog post may compromise the security of MSF patients and/or staff. In this case the testimony will be discussed with the patient to find a solution.
Where patients in this situation receive questions and comments, any answers they choose to give will be recorded and transcribed, prior to posting with no editing, apart from spelling and grammar.
Patients are taking part in the TB&ME project on a voluntary basis having been identified by MSF field staff as people who might be interested in sharing their stories. If, at any point, a patient becomes to ill to continue or decides to leave the project for personal reasons, MSF accepts this without condition and has made it clear to patients that this will in no way affect the care they receive.